With the current conversation around Section 504 and Olmstead at the federal level, this felt necessary. I've written previously about home and community-based services (HCBS), both in positives and where it falls short. Consider this a companion piece. Like most people, I hate to admit needing help. And also like most people, I can be … Continue reading The Value of Community
Tag: autism
Autism and Medical Access
This post brought to you by last week’s news of the possible closure of a local health clinic, one that focuses on serving patients with intellectual and developmental disabilities. Also by the recovery of a blood patch procedure that I never want to experience again. One of the things that doesn't seem to be talked … Continue reading Autism and Medical Access
“Dire Threat”
I’ve spent most of the past few months in a bit of burnout, so I’ve not been as active as usual. Add in the possible final days of Rome over here, and I have been a little bit overwhelmed. Autism Acceptance Month is barely halfway through, and I’m already done. It’s been distressing for everyone, … Continue reading “Dire Threat”
Occupational Hazards
As an adult, it’s almost impossible to find a local occupational therapist that can address sensory needs and supports. I’m sure it exists in some areas, but not here. Once you age out of the pediatric clinics, that’s usually it. You’re on your own. When we’ve tried to find local adult OT clinics that have … Continue reading Occupational Hazards
Autism and Healthcare
Don't neglect our healthcare because you think it's "just the autism" or "anxiety." Attributing everything to our autism is dangerous - and can even be deadly. Not every health issue we have is “just autism.” A personal example: A few years ago, my caregiver and I went to my primary doctor for an urgent appointment.I … Continue reading Autism and Healthcare
