As I type this, there is a large gathering of people assembled outside in D.C.

You may have not heard, but the disability rights’ organization ADAPT has been fighting relentlessly for the FDA to ban the torture on people with disabilities.

The Judge Rotenberg Center, in the middle of it all, is notorious for its usage of electric shocks on autistics. They claim it’s for “behavior modification,” a blanket statement that lets them abuse people as they please. The regulations against them were written two YEARS ago.

The UN declared it to be torture. 

The FDA has already proposed to ban it.

Those who have been subjected to the torture have described it as “being underground in hell” and a punishment “for being disabled.”

Autistic activists have fought against it. 

They have cataloged and put together information.

Most of all, they speak up.

The victims speak out.

And yet, the regulations haven’t been passed.

FDA Director Scott Gottlieb will most likely never read this.

But if he did, I have this to say:


There are autistic people and people with disabilities being literally tortured. These aren’t just little shocks of punishments (which is still wrong) – this is torturing disabled people simply because it can be done. They can’t stand up, leave a coat on, or exercise autonomy without the fear of the shocks. Not only this, but the victims are in so much pain from the inflicted abuse. This isn’t just about politics; this is a human rights violation.

You have the ability to stop this. You can end the pain, protect others from violence,  and prevent the torture of future victims.

Dr. Gottlieb, you have a moral obligation as a M.D. to protect patients and their well-being. Release the regs, ban the devices, and stop the shock.


If you want to learn more about ADAPT’s efforts to fight against this violence, you can go to their website here: http://adapt.org/JRC

Likewise, if you want to donate to help support the protesters, you can help here: https://www.gofundme.com/stoptheshock

Conferences, Midterms, and Naps

It’s official: I made it through half a semester!

Luckily for me, that means it’s officially Spring Break. Not that I’m actually on a break; I have things to do. I’m hoping that I can take the week to plan things and such. Our Neurodiversity Club is doing things for Autism Acceptance Month, I’m still ironing out the details with one of the departments for our film screening of Deej at some point, and I’m trying to come up with events for the community center. I’ve gotten in touch with the local law enforcement and emergency services to come in and meet our kids and teens, let them see the trucks and the K-9 dogs, and let them get familiar with each other. That should be taking place in April, if all goes to plan. Luckily, our local department does autism and disability training with all the officers, so I’m thinking it will go okay.

Our Disability Day of Mourning event went somewhat okay. We didn’t have as big of a turnout as hoped; still, we played a slideshow of the victims and read out the names – the most important part of the vigil.

DDoM Paper Chain
A colorful paper chain lying on top of a brown table. Each individual link has a name of a filicide victim written.

Some of our friends also spoke and shared some readings from I Am Not A Burden by Tuttle, ‘Remember‘ by Amy Sequenzia, and ‘On Our Backs We Will Carry Them by Ari Ne’eman.
On a brighter note, it’s been confirmed that I’m officially scheduled to speak at two conferences this year!
I’ll be doing a session at the local Autism Society’s conference later next month, and another at the Southeast Adult Autism Symposium in July. The first will be over tips for handling meltdowns and making transitions easier, and the other will be on executive functioning and independent living. (I’m already working on the PowerPoint for the second one.)

I’ll try to write more as things come up. One of my goals is to write more, so we shall see.