…but it could be. This post is brought to you by the several months of trying to get a new support worker approved. I might be a little frustrated right now. Home and community-based services are a lifeline for us, and I am incredibly grateful. They help us access the world around us. It empowers … Continue reading HCBS is Not Enough
Tag: autism
Revisions
Another backlog post from December 2023, because I forgot it was in my drafts. Oops. Content note for medical/surgery things: Once again, I recently had surgery to revise my sacral nerve stimulator. Turns out the battery somehow managed to flip sideways - which was not pleasant. Other than being allergic to an adhesive, the operation … Continue reading Revisions
Celebrating
Many autistic people have their ‘special interests’ or ‘hyperfixations.’ Doctor Who was mine. It still is. The idea of exploring time and space, the concept of all life being valuable and sacred, the moral questions the show raised - I adored it all. In a very traumatic time in my life, the show was one … Continue reading Celebrating
Misconceptions
Content note: child death. I was once asked, “what’s a misconception people have when they look at you, as an autistic AAC user? What do they not see?” Honestly, I could’ve answered with many things – and I generally respond with my advocacy scripts that I’ve carefully crafted over time. Things like “not seeing my … Continue reading Misconceptions
Autism and Epilepsy
Here’s your friendly reminder that autism and seizures sometimes go hand in hand. Not always, but sometimes it does. Person with blonde hair and glasses is wearing a light green/blue shirt and a black cardigan. They have several electrodes glued to their head for an EEG to test for seizures. Had an ambulatory EEG this … Continue reading Autism and Epilepsy
