Important note: The PowerPoint presentation I am posting is not mine. However, I was given permission to post it by the President of the organization (thank you Caroline!), as they thought it would be beneficial to share.
Helpful post time!
Our Neurodiversity Club partnered with the university’s student emergency medicine and response organization (EM/ERGE). They presented on what to expect in a medical emergency – what’s in an ambulance, scripts on calling 911, and knowing when to go to a hospital.
As many people know, emergency medical trips are not fun. When you’re autistic, they’re even more difficult. I actually went into hypertensive crisis a few weeks ago, and it was really hard (I’m fine now; that’s what happens when I miss my infusions, apparently).
Sensory overload, being in pain, etc – it all adds up and can make communicating difficult. I had trouble relaying information to the doctor and ended up crying because of it. I definitely had a meltdown by the time I got home. If my friend hadn’t been there and if my college’s public safety hadn’t been involved (they know me well because of other emergencies in the past), it would have been even more of a traumatic experience.
Because of my own personal experience and knowing how hard ER (or A&E) trips are, I was so thrilled that they put together such a wonderful resource for us!
While it’s not a complete comprehensive guide, it’s honestly really impressive. The student group EM/ERGE focuses on emergency medicine and emergency response, and have first-hand experience in the field.
Here is the .pdf file if anyone wants to look into it! Remember that this PowerPoint belongs to EM/ERGE group, as they put a lot of effort into it.
Likewise, I did some exploring and here are some really great resources from one of the websites that has some things in plain language with picture supports. These look very helpful! I’m probably going to print some off with my case manager myself, I think.
Most of us have heard the saying “All cats are autistic.”
Usually it’s meant as a joke, but there is a hint of truth to it. I see a lot of behaviors in my cat that I recognize in myself. In explaining what autism is, I’ve found referencing the difference between cats and dogs to be a way of highlighting the statement of “Different, not less.”
Of course, the usual disclaimer applies: autistic people are not animals. We’re human beings. That really should go without saying, but life experiences have told me that some people need reminders in regards to our humanity.
First, meet Leia Lyta:
Leia Lyta is my emotional support animal here at the university. I have PTSD with dissociative/derealization episodes, chronic depression, and a lot of other conditions in addition to my autism. Her purpose is to help keep me stable and comforted. She also gives me routine; I have to feed her, clean the litter box, brush, etc.
Anyway, she’s going to help me explain autism. No, seriously. Stay with me here. It’ll make sense.
What is Autism?
Autism is classified as a developmental disorder, a neurological variation. 1 out of 68 children are expected to be diagnosed with autism. The predominant theory is that it is caused by genetics (considering both of my brothers are also on the spectrum, I quite agree).
People on the autism spectrum are all quite different, but there are some similar characteristics that we all share. This is where Leia Lyta comes in.
One of the most significant traits of autism is a different experience in terms of sensory input.
We are often sensitive to light, sounds, touch, and other things. If we are startled or overwhelmed, we will react accordingly. This could mean fight, flight, and other biological responses to distress.
Stimming is just one way that we relax when we’re overwhelmed. We also do it when we’re happy, too!
Autistic people love to stim, especially with stim toys and fidgets. They help us focus and regulate our senses.
Funnily enough, Leia also enjoys fidgets herself – but mostly just because she’s curious.
One of the negatives of sensory differences is what we call meltdowns – or as I call them, the absolute Worst Thing Ever. They’re not enjoyable for us or those around us. I know when I have them, afterwards I feel as if I have the flu, hit by a truck, and ran a 5k all in one. I don’t have them as much as I used to since I’ve figured out how to cope a bit better, but when I do have them – it’s not so fun. They’re very scary for me, and sometimes even a little bit messy.
The best way to stop meltdowns is to help prevent it altogether. Being attentive to the autistic person’s needs is the best way. Are they struggling with transitions? Use visual schedules, timers, and other tools to help break it down to make it easier. Is it communication? Try writing, sign language, AAC, or even the Picture Exchange Communication System (at least in the beginning; I’d recommend transitioning from PECS to AAC as they get older). Sensory issues? Be aware of what their triggers are. If it’s bright lights, try dimming them or give the person sunglasses. For noises, try noise cancelling headphones, ear plugs, or give them earbuds to listen to music instead. Have a quiet place that they can retreat to when it gets to be too much.
We love routine and repetition – a lot. Echolalia, special interests, daily routines – they’re all typical for us. Several aspects of our lives can be very repetitive. While many may consider this a negative, it gives us a sense of control and comfort. In a world full of surprises, our brains need this stability.
A perfect example would be ‘special interests’ and fixations. We will think about, play, or watch the same things over and over and over. You might find it a bit odd, but we find it strange when people don’t have them!
Of course, you’ll find that a lot of us love tablets, computers, and television. For some, this is a special interest in itself. A favorite television show, Minecraft, or a YouTube channel – these are all things you’ll probably see some autistic people drawn to.
This is also why you’ll find a lot of autistics love science-fiction, fantasy, or other fictional things.
We also may like the same food, and might eat it every day. This isn’t uncommon, although perhaps slightly unhealthy (such as when the only thing I ate for months was ravioli). It could be due to the texture, the steps involved in preparing it, or just simply that we love it.
Ah, yes. The ‘fun’ part that everyone thinks of.
Typically, our social skills aren’t the best. Some of us are good at ‘masking,’ where we can kinda fake it (I am one of these people, until I hit burnout).
Sometimes our social ‘battery’ is just low and we’re not too interested. Playing and hanging out with others is quite draining! I have to pick and choose how much I can handle.
Other times, we really do want to interact – but it’s just really difficult to understand social nuances and procedures.
A common thing seen in autistic kids and teens is a concept called ‘parallel play.’ This is when we play next to someone; we don’t always communicate with the other person, but it’s still a form of socialization. Sometimes when we’re a little stressed out, it can be good to just sit with other people and do our own thing.
Eye contact is a big issue for a lot of us. For myself, it’s almost painful and definitely uncomfortable. I got away with it as a kid because I would read people’s lips (one of the perks of being hard of hearing). Sometimes we can focus on the conversation and the person much more when we’re not forced to make eye contact.
People often think we’re stand-offish because we may not express things the same. We may not always enjoy hugs or like to be touched. Some of us don’t communicate verbally, or we may be a bit ‘awkward.’
Rest assured, we’re just as lovable as anyone else.
We just have our own ways of expressing affection – just as cats and dogs do! We might not do things like neurotypicals, but that doesn’t mean we’re any less valuable or worthy to love and be loved.
Our brains just work a bit different than other people’s, and that’s okay.