Another backlog post from December 2023, because I forgot it was in my drafts. Oops. Content note for medical/surgery things: Once again, I recently had surgery to revise my sacral nerve stimulator. Turns out the battery somehow managed to flip sideways - which was not pleasant. Other than being allergic to an adhesive, the operation … Continue reading Revisions
Tag: autism
Celebrating
Many autistic people have their ‘special interests’ or ‘hyperfixations.’ Doctor Who was mine. It still is. The idea of exploring time and space, the concept of all life being valuable and sacred, the moral questions the show raised - I adored it all. In a very traumatic time in my life, the show was one … Continue reading Celebrating
Misconceptions
Content note: child death. I was once asked, “what’s a misconception people have when they look at you, as an autistic AAC user? What do they not see?” Honestly, I could’ve answered with many things – and I generally respond with my advocacy scripts that I’ve carefully crafted over time. Things like “not seeing my … Continue reading Misconceptions
Autism and Epilepsy
Here’s your friendly reminder that autism and seizures sometimes go hand in hand. Not always, but sometimes it does. Person with blonde hair and glasses is wearing a light green/blue shirt and a black cardigan. They have several electrodes glued to their head for an EEG to test for seizures. Had an ambulatory EEG this … Continue reading Autism and Epilepsy
Assessments
Today we had to do an assessment to help with accessing future supports. It’s important for things like me having a caregiver, being able to live in the community instead of a group home or institution, and getting funding for therapies and services I need. However, there is a downside to these assessments. It’s one … Continue reading Assessments
Just Keep Stimming 