…but it could be. This post is brought to you by the several months of trying to get a new support worker approved. I might be a little frustrated right now. Home and community-based services are a lifeline for us, and I am incredibly grateful. They help us access the world around us. It empowers … Continue reading HCBS is Not Enough
Year Seven
Content note for the Day of Mourning, filicide, and a much longer post than I meant to write. _ On March 1st, we participated in the Disability Day of Mourning to honor disabled victims of filicide. Every year, a new list of names is shared - adding to the hundreds of names that has been … Continue reading Year Seven
Revisions
Another backlog post from December 2023, because I forgot it was in my drafts. Oops. Content note for medical/surgery things: Once again, I recently had surgery to revise my sacral nerve stimulator. Turns out the battery somehow managed to flip sideways - which was not pleasant. Other than being allergic to an adhesive, the operation … Continue reading Revisions
Celebrating
Many autistic people have their ‘special interests’ or ‘hyperfixations.’ Doctor Who was mine. It still is. The idea of exploring time and space, the concept of all life being valuable and sacred, the moral questions the show raised - I adored it all. In a very traumatic time in my life, the show was one … Continue reading Celebrating
Misconceptions
Content note: child death. I was once asked, “what’s a misconception people have when they look at you, as an autistic AAC user? What do they not see?” Honestly, I could’ve answered with many things – and I generally respond with my advocacy scripts that I’ve carefully crafted over time. Things like “not seeing my … Continue reading Misconceptions
Just Keep Stimming 