As an adult, it’s almost impossible to find a local occupational therapist that can address sensory needs and supports. I’m sure it exists in some areas, but not here. Once you age out of the pediatric clinics, that’s usually it. You’re on your own. When we’ve tried to find local adult OT clinics that have … Continue reading Occupational Hazards
Autism and Healthcare
Don't neglect our healthcare because you think it's "just the autism" or "anxiety." Attributing everything to our autism is dangerous - and can even be deadly. Not every health issue we have is “just autism.” A personal example: A few years ago, my caregiver and I went to my primary doctor for an urgent appointment.I … Continue reading Autism and Healthcare
HCBS is Not Enough
…but it could be. This post is brought to you by the several months of trying to get a new support worker approved. I might be a little frustrated right now. Home and community-based services are a lifeline for us, and I am incredibly grateful. They help us access the world around us. It empowers … Continue reading HCBS is Not Enough
Year Seven
Content note for the Day of Mourning, filicide, and a much longer post than I meant to write. _ On March 1st, we participated in the Disability Day of Mourning to honor disabled victims of filicide. Every year, a new list of names is shared - adding to the hundreds of names that has been … Continue reading Year Seven
Revisions
Another backlog post from December 2023, because I forgot it was in my drafts. Oops. Content note for medical/surgery things: Once again, I recently had surgery to revise my sacral nerve stimulator. Turns out the battery somehow managed to flip sideways - which was not pleasant. Other than being allergic to an adhesive, the operation … Continue reading Revisions
