…but it could be. This post is brought to you by the several months of trying to get a new support worker approved. I might be a little frustrated right now. Home and community-based services are a lifeline for us, and I am incredibly grateful. They help us access the world around us. It empowers … Continue reading HCBS is Not Enough
Category: Reflections
Year Seven
Content note for the Day of Mourning, filicide, and a much longer post than I meant to write. _ On March 1st, we participated in the Disability Day of Mourning to honor disabled victims of filicide. Every year, a new list of names is shared - adding to the hundreds of names that has been … Continue reading Year Seven
Revisions
Another backlog post from December 2023, because I forgot it was in my drafts. Oops. Content note for medical/surgery things: Once again, I recently had surgery to revise my sacral nerve stimulator. Turns out the battery somehow managed to flip sideways - which was not pleasant. Other than being allergic to an adhesive, the operation … Continue reading Revisions
Celebrating
Many autistic people have their ‘special interests’ or ‘hyperfixations.’ Doctor Who was mine. It still is. The idea of exploring time and space, the concept of all life being valuable and sacred, the moral questions the show raised - I adored it all. In a very traumatic time in my life, the show was one … Continue reading Celebrating
Flower Communion
Earlier this month, my caregiver and I went to a local friend’s Unitarian Universalist church - where we were able to participate in their yearly tradition of the flower communion.During the ceremony, everyone brings a flower and places it in a basket or vase. After a small reflection, everyone returns to receive a flower different … Continue reading Flower Communion
Just Keep Stimming 