This post brought to you by last week’s news of the possible closure of a local health clinic, one that focuses on serving patients with intellectual and developmental disabilities. Also by the recovery of a blood patch procedure that I never want to experience again. One of the things that doesn't seem to be talked … Continue reading Autism and Medical Access
“Dire Threat”
I’ve spent most of the past few months in a bit of burnout, so I’ve not been as active as usual. Add in the possible final days of Rome over here, and I have been a little bit overwhelmed. Autism Acceptance Month is barely halfway through, and I’m already done. It’s been distressing for everyone, … Continue reading “Dire Threat”
Occupational Hazards
As an adult, it’s almost impossible to find a local occupational therapist that can address sensory needs and supports. I’m sure it exists in some areas, but not here. Once you age out of the pediatric clinics, that’s usually it. You’re on your own. When we’ve tried to find local adult OT clinics that have … Continue reading Occupational Hazards
Autism and Healthcare
Don't neglect our healthcare because you think it's "just the autism" or "anxiety." Attributing everything to our autism is dangerous - and can even be deadly. Not every health issue we have is “just autism.” A personal example: A few years ago, my caregiver and I went to my primary doctor for an urgent appointment.I … Continue reading Autism and Healthcare
HCBS is Not Enough
…but it could be. This post is brought to you by the several months of trying to get a new support worker approved. I might be a little frustrated right now. Home and community-based services are a lifeline for us, and I am incredibly grateful. They help us access the world around us. It empowers … Continue reading HCBS is Not Enough