This post brought to you by last week’s news of the possible closure of a local health clinic, one that focuses on serving patients with intellectual and developmental disabilities. Also by the recovery of a blood patch procedure that I never want to experience again. One of the things that doesn't seem to be talked … Continue reading Autism and Medical Access
Category: Reflections
“Dire Threat”
I’ve spent most of the past few months in a bit of burnout, so I’ve not been as active as usual. Add in the possible final days of Rome over here, and I have been a little bit overwhelmed. Autism Acceptance Month is barely halfway through, and I’m already done. It’s been distressing for everyone, … Continue reading “Dire Threat”
Autism and Healthcare
Don't neglect our healthcare because you think it's "just the autism" or "anxiety." Attributing everything to our autism is dangerous - and can even be deadly. Not every health issue we have is “just autism.” A personal example: A few years ago, my caregiver and I went to my primary doctor for an urgent appointment.I … Continue reading Autism and Healthcare
HCBS is Not Enough
…but it could be. This post is brought to you by the several months of trying to get a new support worker approved. I might be a little frustrated right now. Home and community-based services are a lifeline for us, and I am incredibly grateful. They help us access the world around us. It empowers … Continue reading HCBS is Not Enough
Year Seven
Content note for the Day of Mourning, filicide, and a much longer post than I meant to write. _ On March 1st, we participated in the Disability Day of Mourning to honor disabled victims of filicide. Every year, a new list of names is shared - adding to the hundreds of names that has been … Continue reading Year Seven
Just Keep Stimming 